My friend Naomi has her article in the Telegraph newspaper today. It's about our mutual friend Emily who passed away in spring 2012.
I am popping up this little entry to honour Naomi and all that she has come through, both within the illness and what it took for her to write this piece for the paper.
She is truly a remarkable person who shines bright like a diamond even in the darkest of skies.
We all have had M.E. (chronic fatigue immune dysfunction syndrome) for over 20yrs, since teenagers.
It has meant due to extreme exhaustion and other symptoms, for the most part we have been in the house and often bed for 95% of that time.
It is possible to recover fully or in part, but its a long journey. It is only life threatening in rare cases, but tragically one of those cases was Emily's.
All of the friends I have who are poorly, are amongst the bravest, kindest, most compassionate people I have ever had the honour to know.
Not a day goes by that I am not influenced, inspired or motivated to continue in my healing, because of what I have come to understand and value, both from knowing them, and from what i have learnt through seeking to heal the illness itself.
Energy to do things is taken for granted by most. If you want to imagine what ME looks like, think of a car without its battery or fuel, seemingly ok from the outside, yet it can't be driven off the drive. It means you are v limited in what you can do.
What you have close, becomes precious, when you can manage to see someone even for a few minutes, or experience the world in a small way, it holds so much more worth. The small things, really do become achievements & so appreciated!
I think you can understand how much I value both what I share here and at instagram, and also seeing the world beyond through your eyes and your experiencing of it.
The community feel of blogs & instagram brings me so much. Thank you for honouring my path and supporting my healing, silently, or through our connecting and chatting. You my friends, make a huge difference.
I am away from Secrets, you may have noticed my lack of posts. I have had to put my attention on a phase of my healing. I will be able to write about that at some future point.
Meanwhile I still share some pics over at instagram.
Love n hope kat x
Naomi's article can be read here: http://www.telegraph.co.uk/health/10137694/Emily-didnt-only-have-ME.html